Good News!

Benign Reactive Lymph Node! The words we were hoping to hear! They also tested her lymph node for ALPS(autoimmune lymphoproliferative syndrome) and it was negative as well. Based on the lymph node findings, they decided not to diagnose her with ALPS. Her blood work indicated the disease, but she lacks other clinical features. Basically, we follow up with them if she shows any signs that are relative to ALPS. The immunologist also felt that she had reacted well enough to the new vaccines and determined that she did not have an immune deficiency as previously thought. She is recovering well.


Her sisters have been amazing! Abby had to endure a 48 hour EEG study, which they thankfully let us do at home. It required placement of 25 electrodes on her scalp with a very stinky glue! They then wrapped her head in gauze and placed a battery pack on the top of her head. She got to carry around a black "purse" for a few days and got to play movie star by being videotaped 24/7. They gave her a pretty bandanna to wear. She was still a little self-conscious, but felt better when her sisters joined in with their own bandannas! The worst part was the two hours spent in the bathtub trying to remove all that glue!!
Although we had some great news this week, she is still looking at further testing and a likely diagnosis of a seizure disorder. She has been much more herself the last few days and has enjoyed more of her normal activities. She has a beautiful little twinkle in her eyes and a smile that can shine through the darkest of days. She has an ability to endear herself to anyone in a matter of seconds!
We have no doubt that she'll make through any challenge that is placed before her! Thank you so much for keeping her in your thoughts and prayers!